Nothing can compensate for the suffering a family endures when a child is diagnosed with cancer. Each family member has his or her own unique struggle. When the child with cancer dies, the burden on family members can seem overwhelming. At Okizu, we try to ease that burden a little. We create a space and a time where it is safe for families to cry, to laugh, to tell stories, to remember a loved one, and to allow thremselves to have fun.

One of our core beliefs is that peer support, or coming together with others who share a common experience, is among the most meaningful kinds of support for people coping with cancer. For families that have lost a child, it can have a tremendously positive effect. The anxiety about what to say to people is instantly lessened, because there is no need to worry that others will be surprised, or shocked, or uncomfortable.

The feeling of isolation that many families describe is also quickly diminished, merely by looking around at the group and knowing that everyone shares the experience of loss. It is always a little easier to bear a burden that is shared with others than to bear it alone.

In the community of shared experience that is Okizu, family members can tell their stories, difficult at first, but made a little easier by the understanding and support instinctive to this special group. They can grieve for their child or sibling, and also celebrate the life that brought such joy, even if for only a short time.

Camp Okizu offers a chance to get away for a weekend as a family, for a few days of fun, relaxation and support. There are traditional camp activities that family members can enjoy while sharing the camp with other families in a similar situation. Additionally, there is some “parents only” time (while our volunteers supervise the children in a variety of fun and exciting activities) and many group activities as well. Arts and crafts projects that create a “memorial” object are available, as well as a candlelight closing ceremony where each person is afforded the opportunity to share some thoughts. All activities at camp are optional, so families can pick and choose the ones that best meet their needs and wants.